2016 MDBR Registration NOW CLOSED!
Walk-up registration available on Saturday morning at 5:30am at the Ice Rink. Cost is $100. See you Saturday!
NOW OPEN: RARE Patient Advocacy Symposium May 6, 2016 in Philadelphia
Global Genes and the Penn Medicine Orphan Disease Center are collaborating for the first time on the RARE Patient Advocacy Symposium, a half-day patient advocate education program on May 6, 2016 in Philadelphia at the Sheraton Philadelphia University City Hotel. Advocates will learn from compelling case studies delivered by patient community and the biotech industry representatives about participating in drug development, keys to advancing research and directing research funding for their rare disease community, and nonprofit organizational growth and development. Speakers representing Emily’s Entourage, Friedreich’s Ataxia, Autism Speaks, Curing Retinal Blindness Foundation, Raptor Pharmaceuticals, Castleman Disease Collaborative Network and the LAM Foundation are participating in this program! Come and network with rare advocates and learn best practices from the community!
Registration for advocates for the program is $20.00, and all registration proceeds will be split evenly to support the Global Genes RARE Patient Impact Grant Program and the Oprhan Disease Center’s Million Dollar Bike Ride program that funds research. Should the registration cost be a barrier to advocates, please contact Samantha Charleston at email@example.com. For questions about the program, please reach out to Kym Kilbourne at firstname.lastname@example.org.
Click here to hear from our inspiring MDBR participants about why they ride!
Congratulations to our raffle winner, Joe Carlson of Team Josh and the DCO Riders! Thank you for participating in our registration raffle, and enjoy your brand new, FREE Cannondale Bike!
Click here for more details!
The 3rd Annual Million Dollar Bike Ride is on Saturday, May 7, 2016! Mark your calendars now!
Questions? Contact Samantha Charleston at email@example.com or (215) 573-6822.
Interested in donating to the Million Dollar Bike Ride? Click Here
Check out the 2016 MDBR Jersey!
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2015 MDBR Research Grant Awards
The Orphan Disease Center is proud to announce 26 grants funded by proceeds from the 2015 Million Dollar Bike Ride to 21 institutions worldwide, ranging from $43,000 to $101,000 from funds raised by 23 disease-specific cycling teams.