Team #cureFOP

Team#cureFOP Giving Page

What is FOP?
One of the rarest, most disabling genetic conditions known to medicine, FOP causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another.

Our Mission
To fund research to find a cure for FOP while supporting, connecting and advocating for individuals with FOP and their families, and raising awareness worldwide.

Our Vision
A cure for FOP, accessible worldwide.

The IFOPA Exists To:

  • Fund research to discover treatments and, one day, a cure for FOP
  • Raise awareness of FOP to end misdiagnosis and ensure people with FOP receive proper medical care without delay
  • Advocate for individuals with FOP who face the challenges of a life-long, debilitating disease
  • Educate those newly diagnosed, along with their families and other caregivers, so they are connected and supported
  • Provide the FOP community access to the best possible FOP and disability resources and services
  • Connect and support the FOP community around the world to end isolation for people living with FOP

Join us in our work to #cureFOP at