Hermansky-Pudlak Syndrome

Team Peak Flow Giving Page
Hermansky-Pudlak Syndrome (HPS) is a genetic metabolic disorder that includes albinism, legal blindness, pulmonary fibrosis (a hardening and scarring of the lungs, necessitating a lung transplant) in some subtypes and platelet dysfunction, causing prolonged bleeding and easy bruising.
Our mission is to gather and disseminate information, to promote awareness and research, and to provide support to our members.  One day we hope to find a cure!  Please help us on this journey, thank you!